IT has been eight months of hard work for the friends and family of a little girl who died of a rare genetic disorder - but now - with more than £46,000 already raised - Madison’s Dream is finally becoming a reality.
After numerous false starts about where to house and build a sensory unit in little Madison’s memory - her family say the unit will be in Northfield Primary School, South Kirkby - subject to planning approval by Wakefield Council.
Madison Murray was diagnosed with muscle wasting Spinal Muscular Atrophy (SMA) when she was born in November, 2001.
The family were told she could live for just six months, but she sadly died in her parents’ arms at just 17 weeks old in March.
But Madison’s mum Laura Kendall, and her dad Jason Murray, dreamt of building a sensory unit in her honour to help other children and adults like her.
Miss Kendall, of Stockingate, South Kirkby, said: “We thought the hardest part would be raising all of the money, but it has been really difficult to find the perfect place for the sensory unit, and now we have finally found it.
“It feels like a massive weight has been lifted of our shoulders.”
Plans are being drawn up ready to be sent to Wakefield Council for approval.
Miss Kendall said: “Madison responded really well to the sensory unit in hospital, but we wanted to build something closer and that would be a lasting legacy to Madison.”
The unit will feature high-tech equipment which can help children with similar disorders through the use of lights and sounds.
Northfield Primary headteacher, Liz Bradley, said the unit would be a welcome addition to the school which caters for youngsters with special educational needs.
She said: “The governors and staff are delighted to be host to Madison’s Dream subject to planning consent.
“We believe the sensory room will be a lasting memory to Madison and through the generosity of Laura and Jason, the community and other children and families will benefit from their kindness.
“We hope this will be a facility that will support the community and we are very pleased and proud of it.”
The community has given their full support, hosting many fundraising events including a sky dive, music events, log run and non-uniform days at schools across the towns, including Minsthorpe Community College - the school of Madison’s older sister, Tori.
Miss Kendall said the whole family were overwhelmed by everyone’s generosity.
It is hoped the centre will open in 2013.